I’m Still breathing..
by Becky, Posted May 13, 2012 at 5:05 pm
It has been a time- it has been a lifetime and I am still breathing in the breath of light from your soul. I am now 16 and a half years since my first diagnosis and 7 and a half since diagnosed with Stage four cancer. I spent the first three months of this year recovering from my surgery where tumors were removed from my left pectoral area, 43 radiations and a broken heart-all are mending, mostly my physical body “ my heart still has longings that my soul remembers”- Ha- I tweeted that one a while ago- it still resonates with me.
I am on Tomoxifen daily and Eurbulin two out of three weeks and my CEA markers are still lower than they have been in years. I have not had scans since Thanksgiving the longest stretch for about 3 years- I am a bit unnerved and a part of me does not want to know. My mortality just keeps playing games and I am not into spending time with trivial things or conversations. I spend lots of time alone and I quite enjoy that it gets my creative juices going.
I am still disgusted with healthcare and upset at the games that are being played on human beings- I was not treated properly- I mandated surgery and asked for a new medicine and I had to fight to be heard- not just once but many times over the years. It is dis heartening to hear attorneys say that I’d have a good case if I was not stage 4 cancer and stage 4 means you are dying and a bad risk. I am serious-ARA and other Oncology Systems in Austin could have killed me if I did not have the where with all to demand different tests and medicine and surgery. “it’s not protocol” We’re sorry we obviously need to do some training and work on our systems.” Well, I am here to tell you silly people- I am still breathing. Shame on you. For the record I am an individual and cannot and should not be treated like a study. Shame on you- MD Anderson- ARA- and I will not name the Austin oncology system that I am now in.
I am a stage four breast cancer WARRIOR- I am not a survivor because it is not over- it will never be over- it is a battle- it is a war- and you need to wake up and see that we do not need to die anymore- we can live.
I am Becky and I am a warrior that is fighting for my life- please help those next to you to be heard- no one knows how to cure us but they can help to keep us going- do not believe that your cancer is gone- demand tests- demand scans-demand options- it is your right- it is your life.
Help us to keep breathing-
Peace-
Becky
I found you today but when I touched your shell you crumbled like sand in between my tears
Posted: May 13th, 2012 under Uncategorized.
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